Showing posts with label discrimination. Show all posts
Showing posts with label discrimination. Show all posts

Thursday, May 10, 2012

10 Tips on How to Communicate with Autistic People by Steve Summers

Hi everyone I would like to introduce my friend Steve Summers an Autism father and also on the spectrum himself so he has lots of experience with Autism, he has written 10 Tips on How to Communicate With Autistic people. Steve lives in Hawaii with his wife Amy and two sons. Here is what Steve had to say about himself:  I was diagnosed with Asperger Syndrome (part of the Autism Spectrum) as an adult. I was diagnosed following my 11-year-old son’s diagnosis with Asperger's. I am happy to have my diagnosis. It was like a light being turned on that illuminated my entire life in a new way. Now I understand why I never really ‘fit in.’ It is like having a huge weight lifted off of my shoulders to have my diagnosis.
I don’t feel that people should make divisions between parts of the Autism Spectrum. I am autistic and I want to work to make the world a better, more understanding and accepting place for all autistic people. We need to work together for the benefit of all on the Autism Spectrum. 
I wrote this list due to continuing difficulties that I have had with the give and take of communicating with others. Many people seem too easily offended because they fail to understand these things about me. We all need understanding and acceptance.
Now here are the 10 tips:

1. Please always keep in mind that communication difficulties are common with Autism. We have difficulties in reading social cues and body language. Be patient and understanding.
2. We tend to take things literally and have often trouble reading between the lines. As a result, we may ask a lot of questions to clarify what is meant by something that you say. I have been told that I ask a lot of questions. Don’t be offended by this. It is our way of being sure that we understand what you are telling us. We may repeat back to you in our own words to try and get on the same page as you.
3. If we misunderstand something that you say, please be patient and expand on what you said and explain what you meant. Don’t assume a negative or hostile intent from us if we misunderstand something that you said. Keep in mind that communication can be difficult for us. Things that come naturally to you take extra effort by us.
4. Please don’t get offended by our communication style. We tend to be frank, honest and matter of fact. Some people may interpret this as blunt or rude. We don’t intend to offend you by not sugar coating the things that we say. We don’t intend to be rude. Please don’t get defensive or assume that we are attacking you. Remember that communicating is hard for us. Don’t make negative assumptions. Too often we get corrected or attacked by someone who fails to give us some slack and the benefit of the doubt.
5. Please don’t expect eye contact. We may be able to force eye contact, but it is not comfortable for us. Making eye contact takes a conscious effort. This effort may take away from listening and understanding what you are saying. I tend to look at a person’s mouth more often than their eyes. Other autistic people will rarely look at your face. This is ok.
6. Please keep in mind that we most likely have been rejected, excluded, ridiculed or bullied in the past. If we seem anxious or insecure this may be due to living in a world that misunderstands us and is often hostile to us. We have to work hard to reach out to others. Please work at reaching back to us with understanding and kindness. If we feel that you are ignoring us we will feel bad about that. We may persist in asking for feedback from you. Please be reassuring and clearly express your support for us.
7. Please don’t speak down to us. Treat us as equals. We may sound flat or have an unusual tone to our voice. We may not speak with our voice at all. We may need to type our words. Please be patient with us. It may take us a while to formulate our answers.
8. Please don’t talk too loudly or yell at us. It is very jarring to us. It makes me jump when someone comes up to me and talks too loudly. It is like having someone jump out in the dark yelling “BOO!” at me. It causes an adrenalin dump in my body. I don’t like this.
9. Please do NOT touch us without warning. It will make us jump. We don’t like unexpected touches.
10. Please don’t assume that we lack empathy or emotion. We pick up on negative or judgemental attitudes. We know when people look down on us or are hostile to us. We will shut down if you show us a lack of respect.
Please keep in mind that we are all different. These issues will vary from person to person. The above tips are written from my perspective as an autistic person. This is just a guide. Feel free to ask me any questions so that I may expand and clarify any areas that aren’t clear to you. Thank you for reading this guide. ~ Steve Summers
http://www.facebook.com/Steve.R.Summers

               
                


















Sunday, August 14, 2011

War & Peace (Autism style)....(these are feelings & opinions only)


Hello again,I will not be posting real names of the guilty as to protect there "integrety" they know who they are & my friends know who I am talking about as I don't want to stoop to there levels!  By the way if they or there "supporters" (aka stooges or trolls)  respond to this blog in any way shape or form they will have blown there protection & cover of who they really are as I want to keep this friendly & positive as I can & I use only real names for the people who respond to my blog.


Well as you know I have posted my side of my life on a major blog: Autism.about.com blog run by my friend Lisa Jo Rudy. For that please see my previous posting.   I would like to explain my side of things as this will help me move on. I have come to accept there will always be people who disagree me as there are so many fractures within the Autism community that its nearly impossible to straighten out. I thought as a person on the spectrum I could be that cleaner upper & advocate helper, but its proven harder than I thought. I know that I sometimes I have a bit of a temper & I am sorry for that however I am trying my best to move on to help those who actually need it & I don't feel like I should have to defend myself everytime someone tries to take shots at me.  I wish these people will understand that I am only human too & not a monster in which there screenshots only have all my negative conversations with them. I am not a bully but someone with Aspergers/HFA who because the net is devoid of real human contact which sometimes make it difficult for me to really associate with people but this the only way I can reach out to make friends, the good, the bad & ugly! lol!  I feel that I am still a respectable member of the Autism community as I have so many more friends online that talk to me & allow me to say my feelings without going into war. I don't want war, I want peace & harmony which my bullies & stalkers may find hard to believe as they have there own walls up. Anyway these bullies which for protections sake will name "mean mommy bear" & "Gertie Gorilla", (if the parents are doing it what are they teaching there children?) as I said if they defend themselves over  this blog where real names not being used they have blown there protected cover.  On Lisa's blog all I did was air my innocent story of what it was like growing up & I would still like to thank Lisa for allowing my story article to stay up but what happened is that  "mean mommy bear" started dredging things she thinks I did wrong to her in the past which was highly out of order on that blog & unethical for that article then I defended myself a little & accused the wrong bully,well I apologized to this bully (Gertie Gorilla) but she just aired the apology & dredged up a little more dirt without remorse! Sorry but these are not advocates in my opinion but people with a personal grudge against me who refuse to move on & are obssessed with doing the wrong thing.  Also when my real friends defended me they took shots at them too,"see what a monster she is we have the screenshots to prove it" they would say.  Yes I may have responded stupidly to there little wargames however, I am still a real contributer with my experiences with my Autism family members. etc,to the Autism community as on Facebook,Twitter etc, I post news links, stories,share others links,stories etc, run some groups etc,& frankly without all of the stuff I do for the community there would be something missing as my real friends & followers depend on me to do this as often as I can.  By the way after this blog I will be posting some links to cyberbullying info etc you can look at.  It seems no matter where I go these cyberbullies want have my head on a platter & put me out of business because they want to be the heroes.  Its alright to disagree with me but any negative attitude behind it is not, & that's how I label a bully. Its a shame that Lisa had to delete ALL the comments & not allow any more because of this issue (at least she has a discussion article on the subject), so the bullies not only ruined it for me, but for Lisa & all her viewers of the blog (yes it was Lisa's overall decision but they were the infuencing factor in that decision), & they have no one but themselves to blame for this as I had a right to air my story & it was Lisa's blog so no need to dredge up the past disagreements for this article,but just comment nicely whether you agree or disagree with it,however they pushed the bounderies by acting vicious & mean about it therefore ruining it for everyone. I respect Lisa as she is my friend I support her & have supported her when other so called " Autism organizations" took shots at her for her previous articles. It seems to the bullies there is free speech but not for me. Its the old I hate Zoey so much she doesn't have any rights syndrome. When that's done they hurt others too as they refuse to move on. These bullies have also bashed a few of my friends too,not nice & frankly time for them to stop acting like children & grow up!  If this the way you teach your children then frankly I am ashamed of those bullies!  By the way they can take all the screenshots they like however it only shows one side of the story,they often don't show how I was provoked or the arguements started anyway,just what I say after the fact in which I am doing my best to watch what I say.


Well in conclusion I would like to thank my friends & followers for there support of me, A Big Thank You! :)  I hope you have enjoyed this article & remember I have not used real names here & these are just opinions & feelings but the trolls will find some excuse anyway to blast me,& I get stronger & stronger each time they push me & will forge on & will not be stopped from airing my opinions,news articles etc.  I however have also learned about a few things from each disagreement that life holds & It seems also that adult Autistics are not allowed opinions either which is a threat to free speech & called hate speech,it's a shame that these bullies are parents, I feel so sorry for there kids & would NEVER EVER attack the kids of those parents with whom  I am disagreeing with.  Why would I take my disagreements out on them? Lets leave your kids out of the disagreements ok?  They are the pawns & innocent ones. They are the ones I fight for everyday for the rights of all Autistics & the day we can one day get together & do some real fighting against the discrimination,hatred & lack of services we see everyday from our level  & the childrens level as well (as the money goes to finding this so called "cure" & cause of Autism thing instead which in my opinion is power,greed & politically motivated as parents are afraid the negative attention will attract funding for there cause & bullies are often mad with power as well, another story for another day).  They are self centered people who only care about themselves & want to bring others down with them. So please everyone please stop the schoolyard fighting its getting not only downright ugly it turns people off to your cause. Thank you I hope you enjoyed this article & I urge anyone who being bullied or stalked please please talk it over with someone you trust you are not alone as this problem can reach criminal proportions!   Zoey


Informative Links on how to deal with these bully's off & online (cyberstalkers as well)


http://en.wikipedia.org/wiki/Cyber-bullying


http://www.stopbullying.gov/topics/cyberbullying/


http://www.definetheline.ca/en/About_Define_The_Line_36


http://www.cbc.ca/news/background/bullying/cyber_bullying.html


http://www.kidshelpphone.ca/Teens/Home.aspx


http://www.nowpublic.com/crime/adult-cyber-bullying-should-laws-protecting-children-also-be-applied-toward-safety-adults-part-iii  (by the way this says you can blog about the bullies as long as you don't use real names which I have not done)


http://www.overcomebullying.org/cyberbullying.html


http://www.haltabuse.org/


http://www.cyberbullying.us/


You can always use google for more info!
For security reasons as well, the only responses that will be posted are ones with real names...thank you

Monday, July 19, 2010

Back to the Swing of Things!

It's been a while since I blogged I was just trying to clear my head of internet bullies,(long story,message me on Facebook),anyway I am still going to be a Autism & Spectrum warrior & continue fighting against our injustice & discrimination.
I am also an example, I am in my mid 30's & have Asperger's.
Once story is particular that got me a bit concerned when a "friend" on Facebook who works for crank blog Age of Autism says that Autistic Adults don't exist,here is the site on which it happened look for Age of Autism repsponse on friend Kev Leitch's Left Brain/Right Brain log: http://leftbrainrightbrain.co.uk/2010/07/more-unidentified-autistic-adults-found/.
There people with Autism & history is filled with them,some early expamples,of those with Autism are Mozart,Einstein,& so forth:
http://www.child-autism-parent-cafe.com/famous-people-with-autism.html
http://en.wikipedia.org/wiki/List_of_people_on_the_autism_spectrum
http://en.wikipedia.org/wiki/Historical_figures_sometimes_considered_autistic
Dr.Temple Grandin famous adult Autistic:
http://www.templegrandin.com/
http://www.grandin.com/
http://en.wikipedia.org/wiki/Temple_Grandin
The Autistic Savant Twins Flo & Kay
Kim Peek
They are remarkable & amazing people! so if you don't believe there are Autistic Adults shame on you! You are wrong,& need to be educated! Autistic children grow up to Autistic adults! This denialism is dangerous, & often spearhead by those in the antivax community like Age of Autism,Generation Rescue,etc. Its such a shame to be in the 21st century & we still want to eradicate or "cure" people who different,yes I have seen the downsides to Autism etc,but that doesn't mean Autism is a death sentence,there are creative & real people with Autism our there.
Please here us & listen to us,before you make your decisions that Autism is hell,which is isn't! I am proud to have Asperger's its a learning curve but you make lemonade out of lemons right? Thank you for listening & have a great day,this blog will updated as I brainstorm more ideas as well. :D