Showing posts with label anti bullyng. Show all posts
Showing posts with label anti bullyng. Show all posts

Thursday, May 10, 2012

10 Tips on How to Communicate with Autistic People by Steve Summers

Hi everyone I would like to introduce my friend Steve Summers an Autism father and also on the spectrum himself so he has lots of experience with Autism, he has written 10 Tips on How to Communicate With Autistic people. Steve lives in Hawaii with his wife Amy and two sons. Here is what Steve had to say about himself:  I was diagnosed with Asperger Syndrome (part of the Autism Spectrum) as an adult. I was diagnosed following my 11-year-old son’s diagnosis with Asperger's. I am happy to have my diagnosis. It was like a light being turned on that illuminated my entire life in a new way. Now I understand why I never really ‘fit in.’ It is like having a huge weight lifted off of my shoulders to have my diagnosis.
I don’t feel that people should make divisions between parts of the Autism Spectrum. I am autistic and I want to work to make the world a better, more understanding and accepting place for all autistic people. We need to work together for the benefit of all on the Autism Spectrum. 
I wrote this list due to continuing difficulties that I have had with the give and take of communicating with others. Many people seem too easily offended because they fail to understand these things about me. We all need understanding and acceptance.
Now here are the 10 tips:

1. Please always keep in mind that communication difficulties are common with Autism. We have difficulties in reading social cues and body language. Be patient and understanding.
2. We tend to take things literally and have often trouble reading between the lines. As a result, we may ask a lot of questions to clarify what is meant by something that you say. I have been told that I ask a lot of questions. Don’t be offended by this. It is our way of being sure that we understand what you are telling us. We may repeat back to you in our own words to try and get on the same page as you.
3. If we misunderstand something that you say, please be patient and expand on what you said and explain what you meant. Don’t assume a negative or hostile intent from us if we misunderstand something that you said. Keep in mind that communication can be difficult for us. Things that come naturally to you take extra effort by us.
4. Please don’t get offended by our communication style. We tend to be frank, honest and matter of fact. Some people may interpret this as blunt or rude. We don’t intend to offend you by not sugar coating the things that we say. We don’t intend to be rude. Please don’t get defensive or assume that we are attacking you. Remember that communicating is hard for us. Don’t make negative assumptions. Too often we get corrected or attacked by someone who fails to give us some slack and the benefit of the doubt.
5. Please don’t expect eye contact. We may be able to force eye contact, but it is not comfortable for us. Making eye contact takes a conscious effort. This effort may take away from listening and understanding what you are saying. I tend to look at a person’s mouth more often than their eyes. Other autistic people will rarely look at your face. This is ok.
6. Please keep in mind that we most likely have been rejected, excluded, ridiculed or bullied in the past. If we seem anxious or insecure this may be due to living in a world that misunderstands us and is often hostile to us. We have to work hard to reach out to others. Please work at reaching back to us with understanding and kindness. If we feel that you are ignoring us we will feel bad about that. We may persist in asking for feedback from you. Please be reassuring and clearly express your support for us.
7. Please don’t speak down to us. Treat us as equals. We may sound flat or have an unusual tone to our voice. We may not speak with our voice at all. We may need to type our words. Please be patient with us. It may take us a while to formulate our answers.
8. Please don’t talk too loudly or yell at us. It is very jarring to us. It makes me jump when someone comes up to me and talks too loudly. It is like having someone jump out in the dark yelling “BOO!” at me. It causes an adrenalin dump in my body. I don’t like this.
9. Please do NOT touch us without warning. It will make us jump. We don’t like unexpected touches.
10. Please don’t assume that we lack empathy or emotion. We pick up on negative or judgemental attitudes. We know when people look down on us or are hostile to us. We will shut down if you show us a lack of respect.
Please keep in mind that we are all different. These issues will vary from person to person. The above tips are written from my perspective as an autistic person. This is just a guide. Feel free to ask me any questions so that I may expand and clarify any areas that aren’t clear to you. Thank you for reading this guide. ~ Steve Summers
http://www.facebook.com/Steve.R.Summers

               
                


















Monday, March 19, 2012

Autism is Not A Tragedy (In Memory of George Hodgins & others Like Him)

Hello again, everyone sorry I haven’t been writing in a little while, personal family emergency with my mother who needed surgery she is home and fine now, and I was feeling a bit down over the winter, but I am fine now! 

What I am writing I have my sister Janet’s blessing to do this opinion piece article too (she is a single mother & has 2 young adult Autistic sons)  I just wanted to say in light of all the hatred towards special need children & Autistic children, there is an awful wave of hate crimes going around in guise of mercy killings (real name is murder), abuses towards us Autistics both young and old etc. It disgusts me that parents/carers in a role of responsibility & trust would do such horrible things to us, namely this article from the San Jose Mercury where an Autistic young man named George was murdered by his mother Elizabeth. In which his mother received all the symptathies etc, but not George who was forgotten especially by the public & by a so called Autism organization called the Autism Society of America, who forgot the victim George in favour of the murderer,George’s mother Elizabeth:

Here is that letter, please know I now longer support ASA due to this issue, If they can forget George they forget the rest of us Autistics as well.  Courtesy of Autistic Hoya Blogger Lydia Brown:

This was written in response to the Autism Society's statement about the murder of 22 year old George Hodgins, an Autistic man whose mother shot first him and then herself in early March 2012. I have included the ASA statement below.

Appendix

March 17 Letters to the Editor, Mercury News
Originally visible here.

Cuts to adult disability support are devastating

The tragic story of Elizabeth Hodgins, who last week took her own life and that of her 22-year-old son with autism, leaves us truly devastated. While this incident is an anomaly, it shows that high stress on parents is very common in the autism community. We fear that stories such as these will continue if families still feel hopeless in their struggles.

According to the Mercury News, Hodgins was exhausted trying to find a program for her son. Like most states, California provides little or no appropriate support to individuals with developmental disabilities once they turn 22. In addition, California has cut $1 billion in developmental disabilities services during the past three years, and the Department of Developmental Services will cut another $200 million within the next year.

We cannot wait long for change. Autism diagnosis is experiencing a staggering growth rate. Today, 65 percent of all state regional center intakes relate to autism. The divorce rate among parents with a child with autism is as high as 70 percent due to the pressure.

Scott Badesch
President and COO Autism Society of America

Marcia Eichelberger
President Autism Society of California
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Believe it or not I really do respect parents, single parents, carers etc of Autistic & other special needs people’s however murder is not acceptable in society no matter what the carers/parents are experiencing,if you need help please go get some help, or move away, or something, however this murder is inexcusable by any standards, I am sorry for your situation, this sets a dangerous precident that murder is the only way out, well I have news for you ITS NOT! I post lots of links all the time on my facebook account that can help those of you who do need the help, and please don’t say just because I am not a parent I don’t understand that. This is poppycock! as the parents I talked to agree with me and are just as appalled by this murder, all those who feel sorry for this parent murderer ought to be ashamed of themselves, and her family ought to be ashamed too for maybe not helping enough and the father must have seen this coming too?
Here are some links from the Autcast blog created by Landon Bryce:

Just to let parents/carers know that we having feelings & dreams too! We are capable of loving, & contributing to society as well! I hope the Autism Society of America is ashamed of themselves knowing they support a murderer.
Here is a blog that I thought was kinda of neutral but unsure anyway this blog is by Autism mother Elaine Hall just for your information: 


Ms. Hall feels sorry for both although I think she should have sided with George a little more…
And to conclude this blog (maybe be amended for future updates as more information becomes available) here is an anti bullying poem by my niece Brittany Doell (she is the daughter from another sister I have, as I have two older sisters), please spread this video around viral thank you! ) 



Thank you & please take care!